Wednesday, April 9, 2014

Evan Primary's 2 Month

November 18th, 2013

Weight 12.13 lbs
Height 23.2 inches
Creon: 21 pills (3000 mg) a day

Growth Status
Green: Low or No Risk
Weight:    Gained 31.8 ounces (expected weight gain is 20-30 ounces)
Height:     Grew 3.19 inches (expected height gain is 3.1-4.4 inches)

Medications per day
Salt           1/8 tsp
Creon        21 (3000 mg) capsules a day
Albuterol   2 Puffs morning and night
Miralax      .25 tsp as needed
AquDEKs  1 mL 

Labs & Xrays
Routine blood work to determine vitamin fat absorption levels. The techs had difficulty finding a vein. Results: Good

Chest xray indicated very mild signs of CF.  The lines in the lungs were a bit darker compared to a normal xray.  

Deep throat swab showed some growth of staff but nothing unusual or worth treating.  CF patients usually have some growth of staff at all times. 

Fecal Elastase test came back pancreatic insufficient

Other Tidbits
  • We enrolled in CF patient registry
  • Discussed starting pulmozyme at 6 months
  • Stools are still irregular.  Decided to up Miralax to see if it would help regulate bowl movements
  • Discussed working with our pediatrician to order Synagis shot (RSV inoculation shot) for winter months.  
  • Thank you to Grandma & Grandpa Allen, Auntie Heather, and Nana Pettingill for coming and supporting us that weekend and following week!


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